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Our Databases

The primary focus of MeCP2.org.uk is the collection of information regarding symptoms experienced by Rett patients and the analysis of the correlation between symptoms and MeCP2 mutation status. Symptom and Mutation Data supplied via our questionnaire will be included within our publically searchable databases.

Answering Our Questionnaire

We encourage families of Rett patients to register with MeCP2.org.uk and to submit a questionnaire response once a year. It will take approximately about 10 minutes to complete the questionnaire. As the amount of available data grows we hope to learn more about how symptoms change with time.

Should you prefer, you may download the printable version of the questionnaire and return it by post.

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